The James Lind Alliance Pernicious Anaemia Priority Setting Partnership, Steering Group and the survey - What's it all about? In recent weeks we’ve been asking you to complete our James Lind Alliance Pernicious Anaemia Priority Setting Partnership Survey. Now, that’s...
Pernicous Anaemia Society
Have Your Say On PA
When the pandemic led to changes in patients’ treatment, we became aware that far too many patients were suffering harm because either their treatment was stopped, or they were told to find an alternative way to treat themselves. Despite ongoing research, there are...
Long COVID and Pernicious Anaemia
Last Updated: 21 February 2021: You may remember that last month we wrote to the Chief Medical Officers in the UK to point out that the symptoms of Long-Covid were remarkably similar to those of Vitamin B12 Deficiency and that..
Treatment concerns during COVID-19? Let NHSE know
So, the clocks went back an hour last week, which means, we suppose, that we get an extra hour of 2020; another hour on a year that has been like no other than we can remember. For far too many patients who have Pernicious Anaemia the Covid-19 pandemic has brought...
Guideline on Pernicious Anaemia commissioned by NICE
After four years of working with the National Institute for Health and Care Excellence (NICE) we are delighted to announce that a Guideline on the Diagnosis and Maintenance of Pernicious Anaemia was commissioned by the institution in August of this year. This is a...
Oral tablets to treat Pernicious Anaemia
We have been made aware that a pharmaceutical company based in Northumberland is about to be granted a licence to produce 1mg tablets of Cyanocobalamin. One of our Pharmacist members immediately contacted the company, which is owned and operated by a GP and was...