The James Lind Alliance Pernicious Anaemia Priority Setting Partnership, Steering Group and the survey - What's it all about? In recent weeks we’ve been asking you to complete our James Lind Alliance Pernicious Anaemia Priority Setting Partnership Survey. Now, that’s...
When the pandemic led to changes in patients’ treatment, we became aware that far too many patients were suffering harm because either their treatment was stopped, or they were told to find an alternative way to treat themselves. Despite ongoing research, there are...
We have been made aware that a pharmaceutical company based in Northumberland is about to be granted a licence to produce 1mg tablets of Cyanocobalamin. One of our Pharmacist members immediately contacted the company, which is owned and operated by a GP and was...
Last Friday we delivered the 45 frozen Urine Samples to the laboratory in Milton Keynes as part of the research programme that is investigating why some patients need more frequent injections than others. The urine samples, which were transported in dry ice, are from...
* Update: this study is now closed. Thank you all very much who participated!* An opportunity for you to participate in an online study that focuses on exploring the symptoms of Pernicious Anaemia. Aim of the study To establish how (and if) physical and psychological...
We recently reported that the molecular analysis of the stool samples taken from those patients who need more frequent injections differed from those who manage perfectly well on one injection every three months. We also stated that the bacteria analysis was due any...