A new neurological patient experience survey is open, to collect vital information about the experiences of treatment and care, social care and welfare received by people affected by neurological conditions. The survey aims to collect enough data to positively...
We are delighted to tell you that we have been successful in our application to host a Parliamentary Reception in the Jubilee Room of the House of Commons on Thursday November 1st, 2018! We will be giving a presentation on the problems with the way in which Pernicious...
Here’s a new opportunity to participate in a new research study exploring what it’s like to live and cope with Pernicious Anaemia. The research aims to explore the coping strategies of managing pernicious anaemia through the lived experiences of those diagnosed. The...
We’ve been contacted by a journalist working for a National Newspaper in the UK who is looking for someone who had itchy skin as one of their symptoms of Pernicious Anaemia. Here’s what she says: “I am looking for a case study of a person with pernicious anaemia for...
You may remember that last September we told you about a PhD student who was looking at how long-term conditions like Pernicious Anaemia affects those who are in education, either full or part-time. Members were invited to contact the student to tell of how, and to...
We know that there are serious problems with the diagnosis of Vitamin B12 Deficiency in general and Pernicious Anaemia in particular. And the new Guidelines from the British Committee for Standards in Haematology acknowledge these shortcomings and point out that the...